My oldest son, Joshua, was four years young when he started showing symptoms of Inflammatory Bowel Disease. IBD is a chronic, ongoing disease with no cure. On the night before kindergarten, Josh had his first infusion at our local children’s hospital.

Josh is 13 now, and can’t remember what life was like before his disease. Regularly scheduled infusions are a familiar part of his routine. He often still feels stomach pain, headaches, fatigue, and even joint, skin, and eyeball issues.

There are a lot of things that are difficult and unfair when it comes to having a child with a lifelong disease. The constant worry about his health and future, missing work or special events when he is sick, spending so much money and time on his appointments.






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